The Fibromyalgia Suffers' Creed

Feel free to substitute your ailment or the ailment of a loved one and please feel free to copy, paste and share.

1). I accept the fact that I have Fibromyalgia, a condition and disease that will limit my abilities in my everyday life.

2). While I will always have Fibromyalgia, some days will be good and some days will be bad. I will be thankful for the good days and TRY to make the most of them.

3). When I am having a bad day, I will TRY to remember that most likely it will not last.

4). When I am having a bad day, I will listen to my body, and get the rest that I need. I will let my family know that I am not feeling well, because they cannot read my mind.

5). I will NOT feel guilty about resting, because I will eventually begin to feel better, and in the long run, it will also benefit my family. They will not become malnourished if they eat peanut butter and jelly sandwiches for dinner.

6). I will NOT feel guilty or worry about the work that is not getting done while I am resting. The world will not fall apart without me, even though it looks like it already has.

7). I will NOT let anyone else make me feel guilty for taking time out for myself. They will never understand exactly what I am experiencing, the pain that I feel, and the exhaustion that I feel.

8). They will never understand the fear that I feel when my symptoms creep up on me, and land me flat on my back.

9). I promise not to feel sorry for myself when I am feeling bad, because there are a lot of people out there who are in worse shape than I am. I will not be sorry for what I don't have, but be thankful for what I do have.

10). I promise to learn a lesson from my illness, which is not to take life for granted. I will enjoy every moment that was given to me, and be thankful for the times that I can smile and laugh.

11). I will TRY to help others who also suffer from my condition. There are many confused and frightened people who need to hear comforting words from someone who has been there. There are many people who need me to take his or her hand and be pointed in the right direction.

12). Lastly, I will TRY not to ask, "Why me?" While Fibromyalgia has weakened my physical body, it has strengthened my heart, my soul, and my spirit.

A Letter From Fibromyalgia

A LETTER FROM FIBROMYALGIA

Dear Miserable Human Being,

Hi, my name is Fibromyalgia, and I’m an invisible chronic illness. I am now ‘velcroed’ to you for life. Others around you can’t see me or hear me, but YOUR body feels me. I can attack you anywhere and anyway I please. I can cause severe pain, or, if I am in a good mood, I can just cause you to ache all over.

Remember when you and Energy ran around together and had fun? I took Energy from you and gave you Exhaustion. Just try to have fun now! I also took Good Sleep from you and in its place gave you Fibro Fog (a.k.a.) Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away too. You didn’t ask for me. I chose you for various reasons: that virus you had that you never quite recovered from, or that car accident, or childbirth, the death of a loved one, or maybe it was those years of abuse and trauma.

Well, anyway, I’m here to stay! I hear you’re going to see a doctor who can get rid of me. I’m ROTFLMAO! Just try! You will have to go to many, many doctors until you find one who can help you effectively. In fact, you’ll see many doctors who tell you ‘it’s all in your head’ (or some version of that). If you do find a doctor willing to treat this ‘non-disease’, you will be put on pain pills, sleeping pills, and energy pills.

You will be told you are suffering from anxiety or depression, given a TENS unit, told if you just sleep and exercise properly, I will go away. You’ll be told to think positively, you'll be poked, prodded, and most of all, you will not be taken seriously when you cry to the doctor how debilitating life is for you every single day!

Your family, friends, and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I’m a debilitating disease. Some of them will say things like “Oh, you’re just having a bad day”, or “Well, remember, you can’t expect to do the things you used to do 20 years ago,” not hearing that you said “20 DAYS ago”! Some will just start talking behind your back, while you slowly feel that you are losing your dignity, trying to make them understand, especially when you are in the middle of a conversation with a ‘normal’ person, and can’t remember what you were going to say next!

In closing, you’ve probably figured out that the ONLY place you will get any real support and understanding in dealing with me is with other people with Fibromyalgia! They are the only ones that will understand your complaints of unrelenting pain, insomnia, fibro fog, the inability to perform the everyday tasks that ‘normal people’ take for granted.

Remember, I’m stuck to you like Velcro – and I expect we’ll be together for the rest of your life. Lucky you!

Author Unknown